Jools can i ask you something? I've been thinking about you, how quick did it take your COPD to progress, how long was the progression, hope you don't mind, I think it would help to have some idea?
************
I have had this thing for over 10 years only I kept it well hidden because I was a smoker who didn't want to quit. I was diagnosed in 2006 when they called me in for a routine asthma check and I couldn't get the thing to budge when I blew on it. That's when they sent the COPD nurse to my home to help me quit smoking, but by that time I had stopped walking anywhere.
I used the shopping trolley like a Zimmer frame or the Internet to shop. Housework became more and more impossible, I can remember scrubbing some outdoor table once and being too puffed out to continue after only half a minute. It got to the point where the only place I could get any relief from pain and discomfort was my bed, so once we got a wireless router I took the laptop and made a life for myself up here in my bedroom.
I have been on two rehabs so far. They have tried everything to get me to move but nothing works. I told my COPD nurse Jacki about Geoff, and she said, great if he can get you moving it will be a miracle. lol.
Truth is I think I have given up. Even the transplant team have lost interest in me. I while away my days...correction my nights talking to my friends on the Internet and reading and learning stuff that I can either use or pass on. I don't leave this room unless Lola comes to see me and that is usually every 2 months or so. I am too weak to pick her up or hold her so I can only watch.
What more can I say? With every time I get sick I lose a bit more lung capacity.
Why don't I exercise more, go back to rehab, try harder? Simple answer hyperventilation. I still cannot find what is causing it and when it is happening, in full throw I can do nothing. It stopped briefly for over 3months just recently. I felt so much better, my sats had gone up, I could walk to the toilet rather than use my commode by the bed. I was thinking positively and was so much happier.
Now they have returned and it is as before and I am so disappointed because the good weather is here and I want to go out and enjoy it. It is so frustrating.
Does that answer your question? Sorry for wittering on. lol
Jools,
ReplyDeleteI so hope that you can gain back some of your progress. I dispise this disease. It is ugly and cruel.
Have someone buy you a nice chase lounge chair and on nice days go outside and get some sunshine.
I had Bill buy me some outdoor furniture and early spring and late summer I can enjoy it. Then it gets too hot to be outside.
I wish we lived closer, I would crawl upstairs (if I had too) to visit with you! LoL
Big hugs to you.
I'm so sorry Kellie I don't think this blog let's folk know when someone has sent you a message as I have only just found this.
ReplyDeleteI have managed to get out a few times since this post and I'm back in rehab so it's all positive stuff apart from this stubborn shadow. I'm trying to be as good as you are at blogging more often but I find it challenging to say the least.
Wouldn't it be wonderful to be neighbours and cheer each other on.
I am following your explorations into stem cell therapy with interest and so sorry you are suffering with the nasty pleurisy, I hope the meds have given you relief from the pain
Love Jools xxx
Dr Itua cure my HIV, I have been a ARV Consumption for 10 years. i have been in pains until i came across Dr Itua on blogs site.I emailed him about my details of my HIV and my location i explained every thing to him and he told me that there is nothing to be scared of that he will cured me, he gave me guarantee,He ask me to pay for items fees so when i'm cured I will show gratitude I did and giving testimony of his healing herbs is what I'm going to do for the rest of you out there having HIV and other disease can see the good work of Dr Itua.I received his herbal medicine through EMS Courier service who delivered to my post office within 5 working days.Dr Itua is an honest man and I appreciate him for his good work.My GrandMa called him to appreciate him and rest of my friends did too,Is a joy to me that I'm free of taking Pills and having that fat belle is a nightmare.you will understand what i'm talking about if you have same problem I was having then not now though.I'm free and healthy Big Thanks To Dr Itua Herbal Center.I have his calendar too that he recently sent me,He Cure all kind disease Like,Cancer,Herpes,Hiv,Hepatitis B,Fibroid,Diabetes,Dercum,Copd ,and also Bring back Ex Lover Back..Here his Contact .drituaherbalcenter@gmail.com Or Whats_app Number +2348149277967
ReplyDelete